Speakers and Topics

Evdokia Anagnostou, MD 

  • Clinical Trials in Canada

Nathalie Bérubé, PhD 

  • "Ask a Scientist” Panel

Terry Boyd, Parent & Past President of O.R.S.A.

  • Adulthood Can Be Awesome! 

Erin Brandon, NP 

  • Medical Care for Children with Rett Syndrome
  • “Ask a Doctor” Panel 

Patrick Brune, M.S., CCC-SLP 

  • Core Vocabulary: A Foundation for Communication and Literacy
  • Instruction vs. Assessment: How, What, When 

Melissa Carter, MD 

  • Medical Care for Adults with Rett Syndrome
  • “Ask a Doctor” Panel

Jane Cassano, MSW

  • Mindful Self-Compassion for Caregivers 

Caitlin Cassidy, MD

  • Medical Care for Adults with Rett Syndrome 
  • “Ask a Doctor” Panel 

Abby Congram, Individual with Rett Syndrome 

  • Life After High School: Raising Awareness about Accessibility

Maureen Donnelly, B.S., M.Ed. 

  • Core Vocabulary: A Foundation for Communication and Literacy
  • Instruction vs. Assessment: How, What, When 

James Ellis, PhD

  • What is Stem Cell Research? 
  • “Ask a Scientist” Panel 

James Eubanks, PhD

  • Overview of Rett Syndrome Research 
  • “Ask a Scientist” Panel 
  • Clinical Trials in Canada 

Jennifer Facchinelli, B.Ed and Parent

  • Encouraging Independent Activities: Ideas for Books, Academics and Leisure on the Tobii 

Vithya Gnanakumar, MD

  • An Overview of Rett Syndrome Therapies 

Daniel Keene, MD

  • Clinical Trials Panel

Melissa Kennedy, B.A, MHA

  • Preparing for Success: Building a Research Ready Community of Families and Clinics

Sherry Lawrence, Parent & O.R.S.A. Board Member

  • Adulthood Can Be Awesome! 

Dave Lysecki, MD

  • Navigating Quality of Life in a Sea of Medical Complexity: Partnering with Health Care to Maximize Joy 

Patrick MacLeod, MD

  • Rett Syndrome Brain Donation
  • "Ask a Scientist" Panel
  • "Ask a Doctor" Panel

Laura McAdam, MD

  • Medical Care for Children with Rett Syndrome 
  • “Ask a Doctor” Panel 

Susan Norwell, M.A.

  • Reading:  Beginner’s Shared Reading to Conventional Reading 
  • Writing:  Foundational Skills to Writing to Communicate 

Mojgan Rastegar, PhD

  • "Ask a Scientist" Panel

Mark Reed, PhD

  • New Drug Development  
  • "Ask a Scientist" Panel

Mirjam Schut, Independent Facilitator

  • Person-Centred Planning: Learning to Dream  

Victoria Siu, MD

  • Introduction to Genetics 
  • “Ask a Doctor” Panel 

David Yang, M.Sc (C)

  • An Overview of Rett Syndrome Therapies